Monday, April 21, 2008

6 months

As the Dude and I were on our way to Grand Rapids for his blood draw today I got to thinking about what he has had to go through in the last 6 months health wise and the tears welled up he has been through so much. A new diet, blood work for this and that, MRI, Dr visit after DR visit with this kind of Dr and that kind of DR, urine tests which is not fun he has to have a bag stuck to him since he's not potty trained, he's been put under anesthesia, fasting, finger pokes,IV's, new medicine,and X-Rays. He has had the following things ruled out Cerebral Palsy, fluid on the brain and/or spinal cord, fragile X syndrome, metabolic disorders and celiac disease.We did learn one thing that he has a deformity in his feet.We are now waiting for a test to come back on diabetes then we got a phone call last week and he will more then likely be going to have testing done to rule out nervous system damage after we meet with the Orthopedic specialist again in May.Reading all that you are probably saying pardon my french but holy shit yes (that is what I thought too). My poor little man has went through all this. He has been a trooper he crys a little but he comes out with a smile on his face.You might be saying what does all this have to do with Autism? The more I read and experience with Mav it seems that children with Autism have alot of other health issues and seem to get sick easier(just my opinion).It's so hard to watch your child go through the everyday struggles and then put this stuff on top of that it gets you to your breaking point. Hearing well Mrs. Koeppen Mavrick will need this or that done..... I think we should try this.....we're going to send you to this Dr for an opinion... It's all hard for this momma I am a young mom that never thought for a moment that I would be raising a special needs child, watching him go through what he has went through, never thought I would know what I know right now, never thought I would be experiencing the life that I am, never thought I would worry and cry so much,never thought I would watch hopes and dreams get chucked out the window because they just won't happen.Peering down at that baby on November 18th, 2003 I never thought for a minute that this would be us living a life with Autism Don't take this the wrong way I love Mavrick more then I love myself I would not change him for anything I just wish I could flip the switch and everything be fine for him.

Please don't have a pity party I am not asking for that I am just venting on here and letting you know that even though most of my posts on here have been happy cheerful ones everyday is not a happy go lucky day I mean it's life you know from your own personal life that it's not all happy.
Thanks have a great day!

1 comment:

Michele said...

Mandy K, you know that I think you are the best mommy in the world! Mav is so lucky to have you as his mom! You were the one chosen to be Mav's mom casue he knew you would be the one to handle it the best! I love you girl and I am more proud of you everyday for being the mommy you are to him!!!