NEWS TO SHARE

Ok so last post was short and sweet things were kinda crazy and I was a bit overwhelmed fast forward to now ans things are good. We had to change Mavs meds up again which was good for him because things were getting bad for him he was seriously moody, aggressive, not a happy camper the meds were doing bad stuff to him. He is doing great now thank goodness. He has surgery next Monday so praying that all goes well and he'll have a quick recovery.

NOW TO THE GOOD NEWS I MEAN REALLY GOOD AND COOL
My parents have a seasonal spot at a local campground that is on a lake Mav absolutely loves it there as do the rest of us but that's not the news. We were given a Bear in the Big Blue House movie about Potty Training he was watching it as mom and I were chatting he was singing and all happy then I got the thought to check to see what else he was doing well the DUDE had went into the bathroom and pooped on the toilet I was so happy and excited and so was he. SO so proud of the dude. Then yesterday we went to get more cloth diapers since that what we decided to try this summer anyways we got home last night and we talked about the potty he decided we'd go sit in the bathroom and he went potty on the toilet not once but twice Louis was home to celebrate with us and he is so proud and excited too. I know this is only a couple times but I really think this is a good start whether it comes to him soon or well whenever he gets the whole bathroom thing down. I'm just happy and excited.

Also wanted to say thank you to Lisa T Howard for the shout out on her blog and to those of you coming over here from her blog thanks for stopping by I/ we really appreciate it.

toodles

THANK YOU

Today I just want to say thank you all for your support it's very much appreciated!!!Thank you for stopping by and reading the blog! Mav is doing pretty good I think things are getting better like i said it will be ok. THANK YOU VERY VERY MUCH!!!!!

Sick Dude

Yesterday Mav came home from school sick. I got the call around 8:20 to come back to pick him up. I felt so bad because he was fine when I dropped him off then I guess it hit right after they got to class. He came home took a shower then we relaxed the rest of the day.He is at school today was doing fine lastnight and this a.m. so I have my fingers crossed i think today will go ok. Still adjusting and figuring things out. I found out yesterday Mav is going on his first field trip in a couple weeks he is going fishing with his class I get to go too if I want which YEs I do. I was assured that he would be totally safe it's all fenced in and lots of helpers which is cool. I'm excited and nervous. He gets to ride a bus for the first time so I hope that goes ok. I'm sure he'll love it.
He's loving the rain we have been getting the last few days he likes to sit and watch it, play in it, and just sit and listen he's so funny. He is loving sleeping in a sleeping bag at night now too. I think his sensory issues are getting a little bit more sensitve he's hokding his ears more, more sensitve to touch and the screaming is not so great.Working on figuring out what to do about it. I am kind of excited that we only have like 4 weeks left of school then we have Summer Break I'm so ready for it. School is going great for him and it will take time to adjsut to the new schedule but I think he will like sleeping in and just hanging out at home.

I think that is all for today. Sorry I haven't been posting everyday like planned but as you all know life sometimes throws you a curve ball and things don't go as planned. lots going on that i didn't have planned that is for sure. Have a great day and thanks for stopping by.

ENT and Surgery

Mav had his ENT appointment on Friday he will be having surgery on June 1st to remove his tonsils and adenoids(sp?) I am trying to preparew myself for the week of hell that is also known as recovery.
We have been going through many changed with the dude lately and I have been trying to take some time for myself that is why I haven't been posting or doing much of anything for that matter. Sorry for not updating on here. Mav is having some mood issues and trying to adjust to his new meds its been really hard I feel somedays as if I'm failing as a momma maybe I'm missing something maybe there is something more I can or should be doing to figure this all out for him. Everytime we take a step forward we take 10 steps back. We'll get through it like we always do I just hope its soon.
Thanks for stopping by have a goodnight!!

A Day for Mav

What's a day like for Mav? Sometimes these things very but this is what it is usually like during the school year.

6:45 am wake up go straight to bathroom for shower (always uses the same shower gel)
7 a.m. get out of shower and dressed (always in the same order diaper, shirt, pants, socks)
Eat Breakfast or watch cartoons depending on the mood he's in whether he eats. Takes meds
Brush teeth
7:35 am get shoes and coat on (coat must be zipped otherwise we have problems)
7:40 get into car this sometimes can take forever with sisters
7:45-7:50 drop off to Miss Carissa and Mrs. Crozier
From 7:50-2pm Mav attends school
2pm momma waits for Mav by the same door
Get home takes off coat runs for bedroom.
maybe a snack maybe some play or a nap
watch some toons
6pm Dinner usually one of a very few things he eats
hang out with the family play
8:30 pm get ready for bed
usually he's up and down unless he sleeps in my bedroom on a little bed we have for him in there. some nights he is up and down all night long others he is so tuckered out he could sleep through a tornado.If he sleeps in his room he eventually ends up in my room around 1-2 am

most days are long but if he didn't have his medicine they would be even longer like before when he could go on very little sleep the whole week long.

What happens every 20 minutes?

Scary isn't it? Imagine stopping every 20 minutes for the next 24 hours to think about a child being diagnosed with Autism and all that family is going through. Just thinking about that gets me emotional that is 72 children/families.If you or a family member are not currently affected by Autism at this rate you soon will. It's time to learn the signs, become aware, make a difference this puzzle needs to be solved!

Just hanging out today playing with some trains, watching Thomas ans friends, eatin a little, and just plain chillin. It's raining and it's Sunday which is relaxing day for us. We have had a pretty good weekend. Mav is a little moody still getting use to new meds but he's doing good. Back to school tomorrow.Have a great evening!

What I heard today....